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Subject: "The Grand Reveal (isn't so grand)"     Previous Topic | Next Topic
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Terminus Est
Member since Nov-5-04
317 posts
Nov-10-14, 10:34 PM (EST)
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"The Grand Reveal (isn't so grand)"
 
   LAST EDITED ON Nov-14-14 AT 03:43 AM (EST)
 
Not to mince words, I found out today I have severe astigmatism and something called keratitis in both eyes, which basically means my corneas are pointed (like a football) instead of round (like a basketball - his terms, not mine). The doctor expressed amazement that I was able to read at all out of my right eye, let alone get as far as I did on the chart thingy, considering I have 20/50 left and 20/60 right.

...So yeah. Kinda explains why I have so much trouble reading lately, huh? Especially since I've never worn glasses, period, and this stuff manifests late teens (about 12 years ago for me). Thankfully Medicaid covers this, and I'll have my first set in about two to three weeks.

...and then I forgot why I was making this post to start with. Derp. Uh, what I wanted to ask was, does anyone here have any experience with this condition, and if so, what can I do in the meantime to lessen the headaches and such?


EDIT: Okay, I was wrong - it isn't keratitis, it's keratoconus. Which is less pants-shittingly scary, but no less disruptive to my ability to see.


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  Subject     Author     Message Date     ID  
  RE: The Grand Reveal (isn't so grand) Gryphonadmin Nov-10-14 1
     RE: The Grand Reveal (isn't so grand) Terminus Est Nov-11-14 2
         RE: The Grand Reveal (isn't so grand) Croaker Nov-11-14 3
  RE: The Grand Reveal (isn't so grand) zwol Nov-11-14 4
     RE: The Grand Reveal (isn't so grand) Nova Floresca Nov-11-14 7
         RE: The Grand Reveal (isn't so grand) Terminus Est Nov-11-14 8
     RE: The Grand Reveal (isn't so grand) goldenfire Nov-11-14 9
         RE: The Grand Reveal (isn't so grand) zwol Nov-11-14 10
  RE: The Grand Reveal (isn't so grand) Terminus Est Nov-11-14 5
     RE: The Grand Reveal (isn't so grand) Gryphonadmin Nov-11-14 6
         RE: The Grand Reveal (isn't so grand) zwol Nov-11-14 11
             RE: The Grand Reveal (isn't so grand) SpottedKitty Nov-11-14 12
             RE: The Grand Reveal (isn't so grand) Terminus Est Nov-11-14 13

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Gryphonadmin
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15316 posts
Nov-10-14, 11:00 PM (EST)
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1. "RE: The Grand Reveal (isn't so grand)"
In response to message #0
 
   LAST EDITED ON Nov-11-14 AT 02:33 AM (EST)
 
>...and then I forgot why I was making this post to start with. Derp.
>Uh, what I wanted to ask was, does anyone here have any experience
>with this condition, and if so, what can I do in the meantime to
>lessen the headaches and such?

Keratitis I can't speak to, but one of my eyes is astigmatic (and both of them are pretty profoundly myopic, which has much the same visual effect you describe without the inflammation and soreness). I hate to say it, but in my experience, there's little you can do about the eyestrain headache part without corrective optics, short of just not looking at things, which isn't very practical. If you have to read before your glasses come, bright light and big print will probably help at least a bit.

Based on a quick readaround, though, I hope your doctor's on top of your case, because it looks like keratitis can be a lot more involved than just the misshapen-eyeballs thing that causes bad vision.

--G.
-><-
Benjamin D. Hutchins, Co-Founder, Editor-in-Chief, & Forum Mod
Eyrie Productions, Unlimited http://www.eyrie-productions.com/
zgryphon at that email service Google has
Ceterum censeo Carthaginem esse delendam.


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Terminus Est
Member since Nov-5-04
317 posts
Nov-11-14, 00:12 AM (EST)
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2. "RE: The Grand Reveal (isn't so grand)"
In response to message #1
 
   Given that this was my first visit to an actual eye doctor in something akin to 12 years, saying he's on top of things is a bit of a stretch. He does seem to know what the condition can do, though, so hopefully he'll have mine well in hand.


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Croaker
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Nov-11-14, 10:40 AM (EST)
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3. "RE: The Grand Reveal (isn't so grand)"
In response to message #2
 
   Good luck, dude.

My dad just went for laser surgery on his eyes. He's amazed at what they can do these days. Then again, he's also on the far side of 60, so he's had plenty of time to watch them develop.

--
Croaker
RCW #mc2
"When in doubt, shoot something. Preferably the enemy."


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zwol
Member since Feb-24-12
91 posts
Nov-11-14, 10:46 AM (EST)
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4. "RE: The Grand Reveal (isn't so grand)"
In response to message #0
 
   I don't know about the keratitis part, but I have an absurd degree of astigmatism in both eyes; more than one optician has called it the worst case they've ever seen.

Until you get your glasses, large type and high contrast are your friend. If you do a lot of reading on a computer screen, try switching from light on dark to dark on light, or vice versa; also try changing up the font. (This advice applies even after you get the glasses.)

Astigmatism affects vision at all distances more or less equally, and the brain is pretty darn good at correcting for it. It may seem, therefore, when you get your glasses, that not much has changed. I recall thinking, when I got my first pair, that the only difference was someone had turned up the edge definition on the world -- just a little. However, wearing the glasses means your brain doesn't have to do that extra work, so you will notice more and more of a difference as time goes by, and the headaches should diminish. You will eventually want to wear them all the time.

Lenses for correction of astigmatism are asymmetric. When you get your glasses, put them on and look through one lens at a time (close the other eye). Both lenses should look about the same. If they don't, have the optician check the lenses against the prescription. I once received a pair with one lens's cylinder axis 90° from what it should have been (this has the effect of making the astigmatism twice as bad in that eye), and it took me like ten minutes to figure out what was wrong because I didn't think of closing one eye at a time. They will fix this for free, but unfortunately, it does involve sending the glasses back to the factory.

Medicaid probably won't pay for the expensive high-refractive-index plastic, but if you can afford to shell out for it yourself, it's worth it: it makes the glasses weigh less, which means they're less likely to give you a headache by pressing on your nose or ears. (Seriously.) It also means you get less chromatic aberration in your peripheral vision. On the topic of pressure on your nose or ears, make sure the frames fit you properly. If your head is wider or narrower than average, the earpieces may pinch. If your nose is flatter or pointier than average, the nose pads will need to be adjusted. Most opticians will make minor adjustments to the fit for free.

Zenni Optical sells high-quality lenses and frames for a fraction of what you'd pay for them in a walk-in store. Caveat: you probably will need to have the nose pads adjusted.


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Nova Floresca
Member since Sep-13-13
176 posts
Nov-11-14, 03:04 PM (EST)
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7. "RE: The Grand Reveal (isn't so grand)"
In response to message #4
 
   >Medicaid probably won't pay for the expensive high-refractive-index
>plastic, but if you can afford to shell out for it yourself, it's
>worth it: it makes the glasses weigh less, which means they're less
>likely to give you a headache by pressing on your nose or ears.
>(Seriously.) It also means you get less chromatic aberration in your
>peripheral vision.

This, very much this. When you get your glasses, take a look at the thickness of the lens at the outside edge, and try to shoot for a similar lens shape and thickness in future pairs. I got one set that had a different thickness at the corners, and the distortion effect in my peripheral vision was enough to give me massive throw-up-and-then-die headaches after wearing them for any length of time.

Not trying to scare you off, for sure; this has only happened to me once in over 10 years of having corrective lenses for astigmatism, but it's something to watch for, especially since the optometrist and I kept thinking it was a flaw in the center of the lens causing the problem, which made troubleshooting an adventure.

"This is probably a stupid question, but . . ."


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Terminus Est
Member since Nov-5-04
317 posts
Nov-11-14, 06:39 PM (EST)
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8. "RE: The Grand Reveal (isn't so grand)"
In response to message #7
 
   I didn't even think to ask while I was there whether they would give me glass or plastic lenses, sadly. Maybe I can con them into it on the refit...


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goldenfire
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Nov-11-14, 06:41 PM (EST)
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9. "RE: The Grand Reveal (isn't so grand)"
In response to message #4
 
   >Lenses for correction of astigmatism are asymmetric. When you get
>your glasses, put them on and look through one lens at a time (close
>the other eye). Both lenses should look about the same.

not...always. I'm astigmatic, but at slightly different axes and to slightly different degrees in each eye - it may only be something like 10 degrees difference (I don't remember exactly, offhand) but it's amazingly significant.

The real fun trick, to demonstrate what your eyes do, is to have someone look through one lens at something relatively square...then rotate the lens :)

I usually get a reaction of "how can you SEE? ugh!"

> If they
>don't, have the optician check the lenses against the prescription. I
>once received a pair with one lens's cylinder axis 90° from what it
>should have been (this has the effect of making the astigmatism
>twice as bad in that eye), and it took me like ten minutes to
>figure out what was wrong because I didn't think of closing one eye at
>a time. They will fix this for free, but unfortunately, it does
>involve sending the glasses back to the factory.

LensCrafters is actually able to make my lenses in-house, even with the high-refractive plastic (and invisicoat, which is ALSO nice to shell out for if you can afford it, and spend all day looking at a monitor). On the other hand, my astigmatism is somewhere in the 2-2.5 range, which is mild/medium (and I believe the scale on that IS logarithmic). My mom, on the other hand, has one eye at about a 1, and one at about an *8*.




==Jeremy
And who exactly is this diabolical 'they' to which we keep referring? If there's some grand conspiracy going on, the right hand doesn't appear to know what the left is doing. --Raziel (Soul Reaver II)


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zwol
Member since Feb-24-12
91 posts
Nov-11-14, 07:51 PM (EST)
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10. "RE: The Grand Reveal (isn't so grand)"
In response to message #9
 
   >>Both lenses should look about the same.
>
>not...always. I'm astigmatic, but at slightly different axes and to
>slightly different degrees in each eye - it may only be something like
>10 degrees difference (I don't remember exactly, offhand) but it's
>amazingly significant.

To clarify, I meant what you see through one eye should be roughly as sharp as what you see through the other eye. Not that the lenses themselves should be the same for both eyes (indeed, they probably won't be).


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Terminus Est
Member since Nov-5-04
317 posts
Nov-11-14, 01:54 PM (EST)
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5. "RE: The Grand Reveal (isn't so grand)"
In response to message #0
 
   Thanks for all the advice, guys.

I was (thankfully) able to find a pair of frames in the Medicaid-approved selection on offer that fit, if not perfectly, then at least reasonably well, and they offered to do additional fitting in-office when they get them and me in the same room again. You'd think they would make something as lifestyle-invasive as glasses frames to order for the individual. Just goes to show mass production isn't always the best course, I guess.

Odds are rather good the lenses will need to be changed at least once - they didn't manage perfect clarity with the machine they use for identifying lenses. I'm not sure what Medicaid covers in that area - all I know is the one pair per three years general rule for Alabama, I can't remember it saying anything about costs of fitting and the like.


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Gryphonadmin
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Nov-11-14, 02:55 PM (EST)
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6. "RE: The Grand Reveal (isn't so grand)"
In response to message #5
 
   >Odds are rather good the lenses will need to be changed at least once
>- they didn't manage perfect clarity with the machine they use for
>identifying lenses.

Yeah, that's an astigmatism thing. They can fiddle with the diopters all they want, but since each astigmatism is unique (unlike simple myopia/hypemetropia), that's never going to hit the target exactly. (This is also why it takes so long to get the damn things, when for "regular" bad eyesight they do glasses in mall shops like ordering a pizza.)

>I'm not sure what Medicaid covers in that area -
>all I know is the one pair per three years general rule for Alabama, I
>can't remember it saying anything about costs of fitting and the like.

Fittings (frame adjustments and whatnot) are a thing most decent opticians won't charge for, at least around here. It's just part of the operational overhead to them, particularly as they rarely take very long.

--G.
-><-
Benjamin D. Hutchins, Co-Founder, Editor-in-Chief, & Forum Mod
Eyrie Productions, Unlimited http://www.eyrie-productions.com/
zgryphon at that email service Google has
Ceterum censeo Carthaginem esse delendam.


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zwol
Member since Feb-24-12
91 posts
Nov-11-14, 08:16 PM (EST)
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11. "RE: The Grand Reveal (isn't so grand)"
In response to message #6
 
   >>Odds are rather good the lenses will need to be changed at least once
>>- they didn't manage perfect clarity with the machine they use for
>>identifying lenses.
>
>Yeah, that's an astigmatism thing. They can fiddle with the diopters
>all they want, but since each astigmatism is unique (unlike simple
>myopia/hypemetropia), that's never going to hit the target exactly.

Also, as your brain gets used to the notion that it doesn't have to correct for the distortion anymore, your ability to tell what setting on the optician's testing machine makes things sharpest for you will improve.

I can't find it just now, but I read an article a couple months ago about using lasers to measure the exact shape of the cornea and then 3D-printing a lens that corrects for it in detail. The idea is that the simple "yea many diopters of cylindrical correction on this axis" astigmatism prescription can only ever be an approximation, but this tech lets you do much better.


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SpottedKitty
Member since Jun-15-04
279 posts
Nov-11-14, 09:01 PM (EST)
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12. "RE: The Grand Reveal (isn't so grand)"
In response to message #11
 
   LAST EDITED ON Nov-11-14 AT 09:04 PM (EST)
 
>I can't find it just now, but I read an article a couple months ago
>about using lasers to measure the exact shape of the cornea and then
>3D-printing a lens that corrects for it in detail.

<nod> Although only the 3D printing part I think is new; the last few times I've had an eye test for new lenses the tech used a machine that went <clunk> and fired a few zillion coherent photons at what I felt sure was the middle of my brain. ;)

Which reminds me, I'm due to have another test about now. BTW, while you're there, see what offers they have for coatings — my usual optician has a two-for-one deal, so I usually have the second pair tinted for driving in bright sunlight. Makes a big difference.

And the plastic lenses really do make a difference to the weight — I need pretty thick ones now (trifocals) and the first time I wore plastic ones, I kept forgetting they were there.

--
Unable to save the day: File is read-only.


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Terminus Est
Member since Nov-5-04
317 posts
Nov-11-14, 10:59 PM (EST)
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13. "RE: The Grand Reveal (isn't so grand)"
In response to message #11
 
   They tried that, I think. The machine could not read my eyes (because of the keratitis).


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