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Eyrie Productions, Unlimited
Gryphon
Charter Member
21362 posts |
Jun-20-21, 06:53 PM (EST) |
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1. "RE: cPap/BiPap recall"
In response to message #0
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Ah, crap, I should have posted about this. I learned about it a couple days ago (I have a Philips DreamStation, which is one of the affected models), and had a little bit of an argument with Philips's social media people about how they opened with a website saying "If you're a patient, stop using your machine and check back later." (It now says "register here and we'll get back to you," which is not really any better. I'm getting by on the unit's retired predecessor, but people who have to turn their old machines in to their insurance companies to get a new one must be screwed.) --G. -><- Benjamin D. Hutchins, Co-Founder, Editor-in-Chief, & Forum Mod Eyrie Productions, Unlimited http://www.eyrie-productions.com/ zgryphon at that email service Google has Ceterum censeo Carthaginem esse delendam. |
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McFortner
Charter Member
545 posts |
Jun-22-21, 06:27 PM (EST) |
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4. "RE: cPap/BiPap recall"
In response to message #1
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LAST EDITED ON Jun-22-21 AT 06:28 PM (EDT) > ... (I have a Philips DreamStation, which is one of the >affected models)Bloody Hell, so do I. This could explain why my allergies have been driving me crazy when I wake up in the morning. And fuck me running, this won't be pleasant because my insurance is Medicare. Michael Michael C. Fortner "Maxim 37: There is no such thing as "overkill". There is only "open fire" and "I need to reload". |
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Gryphon
Charter Member
21362 posts |
Jul-15-21, 02:03 PM (EST) |
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8. "RE: cPap/BiPap recall"
In response to message #7
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>I bet at least some in the sleep clinic had heard stories so they >decided to start cycling clients out of the Phillips and into the >Respironics just in case. Do you mean ResMed? "Respironics" is the same thing as Philips (the division of the company that makes their ventilators is Philips Respironics). As far as I can tell, ResMed and Philips Respironics are the two big names in that kind of device, at least in North America, and have been for years. I've seen DeVilbiss and Fisher & Paykel (the latter of which sounds like a Solaris VII booking agency) in catalogs and the like as well, but they seem to be lesser players in the market. Speaking of which, as of today it's been a full month since I stayed up all night to register my DreamStation for the recall, and I have had precisely >zero< feedback from Philips on the matter. I suspect they're assuming that everyone affected has an insurance plan and/or DME vendor that has already hooked them up with a replacement, and so there's no particular sense of urgency about the timetable of repairs--which, since I'm completely on my own with this stuff, provides a distinct flavor of the underside of the bus. --G. -><- Benjamin D. Hutchins, Co-Founder, Editor-in-Chief, & Forum Mod Eyrie Productions, Unlimited http://www.eyrie-productions.com/ zgryphon at that email service Google has Ceterum censeo Carthaginem esse delendam. |
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McFortner
Charter Member
545 posts |
Jul-15-21, 09:24 PM (EST) |
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9. "RE: cPap/BiPap recall"
In response to message #8
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>Speaking of which, as of today it's been a full month since I stayed >up all night to register my DreamStation for the recall, and I have >had precisely >zero< feedback from Philips on the matter. I suspect >they're assuming that everyone affected has an insurance plan and/or >DME vendor that has already hooked them up with a replacement, and so >there's no particular sense of urgency about the timetable of >repairs--which, since I'm completely on my own with this stuff, >provides a distinct flavor of the underside of the bus. Since I'm on SSDI, may I suggest from experience you try the asphalt. The oil leak from the engine of the bus adds that certain je ne sais quoi that the taste really needed. :) I guess I'll hear back about this damn machine eventually.... Michael C. Fortner "Maxim 37: There is no such thing as "overkill". There is only "open fire" and "I need to reload". |
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Gryphon
Charter Member
21362 posts |
Aug-19-21, 06:46 PM (EST) |
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12. "RE: cPap/BiPap recall"
In response to message #0
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LAST EDITED ON Aug-19-21 AT 06:46 PM (EDT) Today, two months after registering my device's serial number, I received the first email I've had from Philips about this matter. It includes the following:"Our organization is working diligently to replace or repair devices as soon as possible. Based on current estimates of impacted devices worldwide, we are working towards completing this effort within approximately 12 months." (emphasis mine) Farther down, it suggests: "In the meantime, please speak to your doctor concerning your therapy options. This is an important step as every patient scenario can vary and we respect the relationship between you and your physician regarding your personalized care." Translation: They assume, as I knew they would, that everyone has an insurance company that will hook, and probably already has hooked, them up with a replacement device, so they are experiencing no sense of urgency. They can even dress their shrugging-off of the problem up as a matter of Respecting Medical Privacy. I do not have the spoons for this shit. --G. -><- Benjamin D. Hutchins, Co-Founder, Editor-in-Chief, & Forum Mod Eyrie Productions, Unlimited http://www.eyrie-productions.com/ zgryphon at that email service Google has Ceterum censeo Carthaginem esse delendam. |
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Gryphon
Charter Member
21362 posts |
Dec-13-21, 06:46 PM (EST) |
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13. "RE: cPap/BiPap recall"
In response to message #0
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Update: The last email from Philips I got about this was still saying it'd be a year or more before they can replace the affected devices (though it's ambiguous whether they meant "you will be waiting at least another year" or "a year from now we'll have finished replacing everything"--to be fair, probably the latter). However! In the course of being set up for a completely unnecessary except bureaucratically required diagnostic sleep study this afternoon, I was told by the nurse at my local hospital who does these things that the latest insider intel they have from Philips is that the affected machines are really only a problem if their owners have used those snake-oil ozone-generator "cleaning" gadgets on them, the failure incidence is about 0.01%, and they should tell patients who haven't used the ozone things that they should keep using the recalled machines until a replacement arrives. So that's nice, particularly since we're heading into winter power-outage season now, and the emergency battery I bought with the DreamStation doesn't work with the older machine I've been using while I wait. Meanwhile, because of this study, I don't get to use any machine tonight, which should be... fun. Good thing I've already finished my final project for this semester. It's interesting how the state of the art in these things has advanced, though. When I was originally diagnosed with OSA in 1998, the at-home sleep study I underwent involved a technician coming to my house, rigging up a suitcase-sized... thing... next to my bed, and gluing a bunch of electrodes to my head. The thing they sent me home with today is about the size of an iPod Shuffle (the square kind, not the original pregnancy-test model), and involves a chest band to measure lung action, a nasal cannule to gauge airflow, and a pulse ox. Partly this is because they're only testing for obstructive sleep apnea this time (the brainwave wires were to check for central sleep apnea, which is a different condition), but still. Annoyingly, what this study can't do is titrate for therapy levels, but then again, the PAP machines pretty much do that themselves these days anyway. The nurse told me that most of the time they don't even bother doing a second sleep study to titrate these days--just get the patient an auto machine and let it figure it out. TLDR: Philips is, perhaps unsurprisingly, telling doctors something less broadly alarming than it's been telling patients about the CPAP recall, but I am going to tell you to check with your own doctor before doing anything so I won't get sued. --G. -><- Benjamin D. Hutchins, Co-Founder, Editor-in-Chief, & Forum Mod Eyrie Productions, Unlimited http://www.eyrie-productions.com/ zgryphon at that email service Google has Ceterum censeo Carthaginem esse delendam. |
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